Advocating for your child's health can be TOUGH!
1. Trust your gut. As a parent you are the expert on your child. You see the whole picture and understand how their symptoms are affecting their quality of life (and your family's!). You know when something isn't right... Don't take "let's wait and see" for an answer!
2. Build a team of providers that take the time to listen to all your concerns. Find the ones who see your child as a PERSON not just a list of symptoms they can attempt to alleviate. Be on the look out for the providers who are team players and are willing to collaborate with others. (This is hard and can take lots of perseverance!)